I haven’t posted in awhile. I am still feeling pretty raw and not really sure what to do with myself at times.
A little over a week ago I got some devastating news. Out of the 6 embryos we sent for PGS testing none of them were normal. 5 had various abnormalities and 1 was “no result”. My RE felt that none would be viable and we have nothing to transfer.
I was completely shattered. I knew they wouldn’t all be normal, statistically about 30-50% are typically “aneuploid”. I had read some studies showing some women, even egg donors, can have higher rates of abnormal embryos than normal but to not have a single normal embryo really shocked me.
Now I feel like there are many more questions than answers.
I feel like the best way to move forward is to treat this like a failed cycle and move forward but I must say this has really shaken my confidence and made me question whether or not this is our answer. It was really difficult to start considering the “what ifs” and possibly confront the future child-free…
My RE didn’t mention the “no reuslt” embryo, I was told they were all abnormal but when I got a copy of the results I found out that isn’t necessarily the case…. Part of me is holding out hope that this little bean could still be normal and that they just didn’t get enough DNA to be able to amplify the sample.
For now I am trying to somehow put this behind me and trying to feel “normal” again. I wish I was in my happy little hopeful bubble. I feel like a wounded warrior already…
I am so very sorry. That is heartbreaking. I would definitely consider transferring the no-result embryo, or at the very least don’t discard it yet. I will try and find this NYT piece I read recently about how genetic testing can have some errors. I’ll post a link here if I track it down. Sending hugs your way!
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I have been reading some articles too. I did NGS testing which has very high sensitivity/specificity so I feel like the results are accurate and they all were “complex” abnormals…I just wish I knew why!!
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Oh my goodness. This is my wort nightmare and I’m so sorry that you’ve lived it. I’m keeping you in my thoughts. I wish I could give you a huge hug. xx
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Words cannot accurately express my hurt for you. I hope you find comfort through this crappy (i really want to use a bad word instead) time.
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I’m so sorry 😦 Are they able to test the no result embryo again?
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I am not sure, I will likely be doing another cycle so hoping we could send it then if we end up doing PGD again….I hope its not discarded
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Im sorry. Really gut wrenching. Im thinking of you & sending you strength.
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Thank you
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I’m so so so sorry that you are going through this. On our second IVF all of embryos came back as abnormal…it totally sucks and feels like you’ve been cheated out of doing the whole IVF cycle. Have you had your karyotypes tested (in case you have a balanced translocation?)
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Totally feels like our dreams have been stolen. We are going to be karyotyped before we try again…
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I’m so sorry you got such bad news. Is there any way they could test the no result embryo again? I hope your doctor will have some good advice for you on how to proceed. Hugs
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Thanks! Yes the RE just told me yesterday they will re-biopsy that one free of charge but not holding my breath…Hoping it was just massively bad luck! We will make some changes to the protocol next time and cross our fingers and toes!
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